A History of AIDS Social Work in Hospitals: A Daring Response to an Epidemic,9780789015877

A History of AIDS Social Work in Hospitals: A Daring Response to an Epidemic

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ISBN13: 9780789015877
ISBN10: 0789015870
Format: Nonspecific Binding
Pub. Date: 2003-10-09
Publisher(s): Routledge
List Price: $80.99

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Summary

This one-of-a-kind book presents firsthand historical perspectives from hospital social workers who have cared for HIV/AIDS patients from the beginning of the epidemic in the early 1980s until the present. The contributors recount their personal and clinical experiences with patients, families, significant others, bureaucracies, and systems during a time of fear, challenge, and extreme caution. Their experiences illustrate the evolution of social work as the development of new programs and treatments increased the life span of HIV/AIDS patients. Book jacket.

Table of Contents

About the Editors xiii
Contributors xv
Acknowledgments xxv
Introduction xxvii
Barbara Willinger
Alan Rice
SECTION I: MEDICAL OVERVIEW
Chapter 1. An Adult Infectious Disease Doctor's Encounter with HIV/AIDS
3(10)
Alan Berkman
Chapter 2. A Pediatrician's Encounter with HIV/AIDS
13(8)
Elaine J. Abrams
SECTION II: UNCHARTED TERRITORY
Chapter 3. Response to the AIDS Epidemic: Metropolitan New York
21(14)
Esther Chachkes
Elaine Ehrlich
Mera Eisen
Sister Rosemary Moynihan
Chapter 4. The Emergence of Social Workers in the AIDS Epidemic: SWAN-Social Work AIDS Network, San Francisco
35(6)
Daniel R. Ostrow
The Emergence of SWAN
36(2)
The Growth of SWAN
38(1)
The Politicalization of SWAN
38(3)
Chapter 5. The South Carolina Experience
41(10)
Cynthia Cannon Poindexter
Organizational Genesis
41(1)
Organizational Practice and Culture
42(1)
Daily Life in an Early ASO
43(2)
Organizational Challenges
45(1)
The Past Is Present
46(1)
Family Secrets
47(2)
Conclusion
49(2)
Chapter 6. Social Work in HIV Care: A Labor of Love in Philadelphia
51(8)
Patricia A. Stewart
Chapter 7. The New York State Response: Case Management for Persons Living with HIV and AIDS
59(12)
Jay Freedman
Development of COBRA Community Follow-Up
63(1)
Measuring Case Management Outcomes
64(3)
The New Era of Managed Care
67(1)
The Future of Case Management in New York State
68(3)
Chapter 8. The New York City Division of AIDS Services
71(12)
Anita Vitale
Background
71(1)
The Model
72(1)
The Program
73(1)
The Staff
74(1)
The Clients
75(2)
Housing
77(2)
Change
79(4)
Chapter 9. A Case of Serendipity: A Brief History of the Early Years of the Annual National Conference on Social Work and HIV/AIDS
83(12)
Vincent J. Lynch
Introduction
83(2)
Can This Idea Work?
85(2)
The Conference Becomes a Reality
87(3)
Can This Conference Continue?
90(2)
A Look at 1992 to the Present
92(1)
Concluding Thoughts
93(2)
Chapter 10. Motivating the System from Within
95(8)
Barbara Willinger
SECTION III: THE HEYDAY
Chapter 11. From Medical Social Work to the Constant Object: The Long and Winding Road
103(16)
Diane Pincus Strom
Chapter 12. You Cannot Make This Stuff Up
119(8)
Alan Rice
Barbara Willinger
Chapter 13. Rethinking Group Process-Or Do We?
127(6)
Alan Rice
Chapter 14. HIV Support Groups in a Hospital Setting
133(10)
Charlene Turner
Group Formation
133(1)
Group Facilitation
134(1)
Group Themes and Issues
135(8)
Chapter 15. Group Intervention in the Early Days of the GRID Epidemic: A Reflection of One Social Worker's Personal Experience
143(12)
Lori Wiener
Introduction
143(2)
Common Emotional Reactions
145(2)
Group Intervention
147(5)
Yesterday, Today, and Tomorrow
152(3)
Chapter 16. The Missing Support: Group Interventions with AIDS Patients
155(6)
Barbara Willinger
The Existing Groups
156(1)
Program Expansion
157(1)
Group Expansion
157(2)
The Absence of Need
159(2)
Chapter 17. Twenty Years of the Epidemic: A Social Work Administrator's Personal Perspective
161
Susan W. Haikalis
1981 to 1985-The Crisis to Be, Still Unknown (3,500 Cases Worldwide by 1983)
161(3)
1985 to 1995-A Decade of Hope (10,000 AIDS Cases in the United States in 1985)
164(4)
1995 to the Present-Living with Reality and Coping with New Challenges (500,000 AIDS Cases in the United States in 1995)
168
Chapter 18. Supervising Pediatric HIV/AIDS Case Managers: Lessons Learned
111(72)
David Strug
Introduction
171(1)
Background
172(1)
The Supervisory Model
173(6)
Conclusions
179(4)
Chapter 19. Social Work with Hospitalized AIDS Patients: Observations from the Front Lines of an Inner-City Hospital
183(16)
Barbara Willinger
Martha Powers
Chris Carlson
Lorna Andria Lee
Mary Beaudet
Miriam Bernson Adams
John Kleinschmidt
Harper Model: Responses and Vignettes
184(5)
A Model of Hospital AIDS Work
189(5)
Conclusion
194(5)
SECTION IV: THE DECLINE/THE FUTUREWHAT DOES IT LOOK LIKE?
Chapter 20. Social Work, New York State AIDS Centers, and Special Needs Plans
199(4)
Eli Camhi
Chapter 21. HIV/AIDS and Social Work Practice in Rural North Carolina: A Retrospective Account
203(10)
Devin L. Griffith
Introduction
203(1)
Community and Health Care Provider Reactions
204(2)
Practice Issues
206(2)
Perspectives on Support Resources
208(2)
Professional Awareness and Future Practice Considerations
210(3)
Chapter 22. Hospital Social Work with HIV/AIDS Patients to 1995: Death, Dying, Layoffs, and Managed Care
213(8)
Chris Carlson
Chapter 23. Acute Care: Personal Reflections on Providing Social Work Interventions to Patients with HIV/AIDS
221(8)
Matthew Rofofsky
Chapter 24. Social Work in an Interdisciplinary HIV/AIDS Program
229(10)
Holly H. Dando
Charles J. Finlon
The Team
230(1)
Funding
231(1)
Staffing
231(1)
Communication
232(1)
Committees
233(1)
Recent Growth
234(1)
Clinic Structure
234(1)
Substance Abuse
235(1)
Groups
236(1)
Concrete Services
236(2)
Celebration
238(1)
The Future
238(1)
Chapter 25. The Integration of a Permanency Planning Program
239(2)
Dina Franchi
Chapter 26. A Personal Journey to Improve Access to HIV-Related Mental Health Services
241(14)
Nan O'Connor
Strategies Toward Improving Mental Health Access
248(1)
Achieving the Goal
249(2)
Treatment Groups
251(1)
Problems of the Psychiatric Patient
251(1)
Treatment Focus Shift
252(3)
Chapter 27. Revisiting the "Lazarus Syndrome"
255(8)
Mary Tucker
New Issues and Challenges
256(1)
Social Work Responses to These Challenges
257(6)
Chapter 28. A Dialogue About The Changing Face of Service Delivery and Supervision
263(14)
Susan C. Rucker
Margaret E. Piazza
Development of AIDS Social Work
265(2)
The Current Climate
267(1)
Social Work Response to Development in Care
268(2)
Funding and Program Development
270(2)
The Impact of Managed Care
272(1)
Supervision
273(4)
Chapter 29. The Challenges of Working with Perinatally Infected Adolescents: Clinical and Concrete Possibilities
277(12)
Matthew Feldman
Perinatally Infected Adolescents
277(1)
Adolescent Development
278(1)
Families with Perinatally Infected Adolescents
279(1)
Clinical Challenges and Nonadherence
279(5)
A Look Toward the Future
284(5)
SECTION V: UNIQUE EXPERIENCES
Chapter 30. The Development of a Custody Planning Program for HIV-Affected Families
289(16)
Sally Mason
Development of the Program-1990 to 1992
290(2)
Program Concepts and Features
292(2)
Facilitators to Implementation
294(1)
Barriers to Implementation
295(2)
Ten Years Later
297(3)
The Role of Hospital Social Workers in Custody Planning
300(5)
Chapter 31. HIV/AIDS Case Management in the ER: A Link to Continuity of Care
305(10)
Lisa Chapa
Introduction
305(2)
Case Finding in the ESD
307(1)
HIV ER Case Manager Roles
308(4)
Conclusion
312(3)
Chapter 32. The Evolution of HIV Case Management Standards for Sonoma County
315(14)
Kevin Farrell
Historical Background
315(2)
The Beginning of Change
317(3)
New Innovations
320(9)
Chapter 33. Telling the Social Work Story for Survival
329(16)
Darrell P. Wheeler
When Compassion and Commitment Are Not Enough: The Dilemma of HIV/AIDS Social Work Services
330(1)
The Need to Tell Our Stories: Documenting for Survival
331(1)
Telling Our Stories is More Than "Storytelling": The Three Ws
332(7)
Case Example
339(3)
Conclusion
342(3)
Chapter 34. Afterword
345(4)
Barbara Willinger
Index 349

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